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           Gilbert Barr Jr.

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From November 2000 through April 2002, Gilbert wrote his autobiography by way of his first book entitled “ME & SARCOIDOSIS – A LIFETIME PARTNERSHIP”. Since this was his first book and a subject in which he had great personal interest, he took on the project solo, as he handled all aspects of the project personally. As his main objective was to bring awareness to sarcoidosis and his story, this was extremely important to him, as he wanted no outside influence in regard to his story. In April 2002 the book was published via iUniverse Inc.

After the release of his first book, Gilbert has spent time traveling around the country and speaking at various sarcoidosis events. Some of these events included the Sarcoidosis Awareness Day in August 2002 at the Mount Sinai Medical Center in New York City, the 11th Annual Sarcoidosis Awareness and Education Conference in March 2003 sponsored by the Sarcoidosis Network Foundation in Cerritos, California and back in his hometown of Detroit, Michigan, he spoke at the Michigan Sarcoidosis Awareness Day Conference in October 2002; to just name a few. In addition, he has been featured on television newscasts and given both live television and radio interviews to promote sarcoidosis awareness. Along with the speaking engagements, television and radio appearances, Gilbert has given interviews and written articles for various sarcoidosis and other health related organizations, such as the Diabetes Insipidus Foundation’s newsletter, as an example. He has provided his story not only in this country but in other parts of the world as well, such as for the Sarcoidosis And Interstitial Lung Association based in London, United Kingdom. In addition, he has been involved with several non-profit sarcoidosis organizations across the country to help promote sarcoidosis awareness and patient support by being involved in patient support activities, writing letters to various elected officials to stress the importance of sarcoidosis legislation, provided suggestions for House Resolutions, and by providing advice regarding various sarcoidosis patient topics. He is also a member of the SarcoidBuddies online support group and the Diabetes Insipidus Foundation, Inc.

Gilbert’s experience with these organizations, communications with patients from all over the world, by way of the many e-mails he receives from patients and caregivers alike, along with face to face conversations with other patients and medical professionals, gives him personal experience that in turn inspired him to write his second book starting in 2003 and completing the final touches in May 2004, entitled “LIVING WITH SARCOIDOSIS & OTHER CHRONIC HEALTH CONDITIONS”. All aspects of the book were again overseen by Gilbert and published via iUniverse Inc. Everything Gilbert writes about in this book, he has personally experienced or has been told directly by way of approved interviews with the actual patients. When it comes down to it...there is no better experience than what you have experienced personally.
 

 

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